#specialneedsfamily Instagram Photos & Videos

specialneedsfamily - 48.3k posts

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    Witnessing the sweet love and unconditional understanding between these brothers warms me to my very core.

Even now at ages (almost) 7, 5 and 2 these boys have been faced with great big challenges, and it won’t go away any time soon, but they fight hard, and love even harder. 
I am honoured that I’m their mum. I couldn’t imagine what life would be without my boy tribe. 
I am proud to be Joshs wife, and I am blessed to tackle life with these crazies everyday with him. ‘ blah blah blah sappy stuff ‘ 😍

#boytribe #jaxsoneugene #lincolnsamuelxavier #haydndavis #proudmum #asd #specialneedsfamily 
SO MUCH LOVE ❤️

    Witnessing the sweet love and unconditional understanding between these brothers warms me to my very core.

    Even now at ages (almost) 7, 5 and 2 these boys have been faced with great big challenges, and it won’t go away any time soon, but they fight hard, and love even harder.
    I am honoured that I’m their mum. I couldn’t imagine what life would be without my boy tribe.
    I am proud to be Joshs wife, and I am blessed to tackle life with these crazies everyday with him. ‘ blah blah blah sappy stuff ‘ 😍

    #boytribe #jaxsoneugene #lincolnsamuelxavier #haydndavis #proudmum #asd #specialneedsfamily
    SO MUCH LOVE ❤️

    28 2 29 minutes ago
    The birth of Sam left me feeling overwhelmed with grief and guilt. I was mourning the abrupt ending to my pregnancy and the loss of a birth experience like I had with Maddie and Noah. I was ashamed that I had been unable to carry him longer and I felt like my body failed… like I had failed him.
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This is the last pic I have of me and my bare belly. 25 weeks 4 days the morning I went into triage… I had done a prenatal workout and was truly so proud of myself for staying active… something I definitely did not do with Maddie or Noah.  I was trying to take my mind off my worry about Sam. .
I see pics of me from life “before Sam” and I look so different (and well rested 😉). My world hadn’t been rocked, and we were blissfuly unaware of how drastic life was about to change. Right now our biggest worry was how having a child with Down syndrome would change our lives…
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Little did we know just how much have a #mircopreemie would change our life. I wish I could go back and enjoy that pregnancy since it was my last. I wish I could tell myself to enjoy it while it lasts because life is about to become HARDER than I ever imagined. I wish I could tell myself that I will emerge from this like the powerful and resilient person that I am. It can be hard to remember this when you feel like a shell of the person you once were, but trust me… it has taken me a LONG time... but I am more ME now than I have ever been, and I am CAPABLE of overcoming so much more than I ever thought ❤️❤️ #lifeaftertrauma #overcominganxiety

    The birth of Sam left me feeling overwhelmed with grief and guilt. I was mourning the abrupt ending to my pregnancy and the loss of a birth experience like I had with Maddie and Noah. I was ashamed that I had been unable to carry him longer and I felt like my body failed… like I had failed him.
.
    This is the last pic I have of me and my bare belly. 25 weeks 4 days the morning I went into triage… I had done a prenatal workout and was truly so proud of myself for staying active… something I definitely did not do with Maddie or Noah. I was trying to take my mind off my worry about Sam. .
I see pics of me from life “before Sam” and I look so different (and well rested 😉). My world hadn’t been rocked, and we were blissfuly unaware of how drastic life was about to change. Right now our biggest worry was how having a child with Down syndrome would change our lives…
.
Little did we know just how much have a #mircopreemie would change our life. I wish I could go back and enjoy that pregnancy since it was my last. I wish I could tell myself to enjoy it while it lasts because life is about to become HARDER than I ever imagined. I wish I could tell myself that I will emerge from this like the powerful and resilient person that I am. It can be hard to remember this when you feel like a shell of the person you once were, but trust me… it has taken me a LONG time... but I am more ME now than I have ever been, and I am CAPABLE of overcoming so much more than I ever thought ❤️❤️ #lifeaftertrauma #overcominganxiety

    222 10 1 hour ago

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    It is a lot when your kid wakes up confused about what day it is and what time it is. Having conversations and debates about the appropriate clothing to wear for the weather. Letting him know that casual shoes do not go with sweat pants. Reminding him to brush his hair everyday.

So much happens in my home before 7:00 AM. Most days I’m kicking ass and some days #autism is kicking mine 😞 💙 🧩

    It is a lot when your kid wakes up confused about what day it is and what time it is. Having conversations and debates about the appropriate clothing to wear for the weather. Letting him know that casual shoes do not go with sweat pants. Reminding him to brush his hair everyday.

    So much happens in my home before 7:00 AM. Most days I’m kicking ass and some days #autism is kicking mine 😞 💙 🧩

    9 2 1 hour ago
    🔆tell me about your weekend! What fun things did my fit family do this weekend?! 🍓
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We got to spend some time with family & friends, serve at our church, and play in an open field tonight🤸🏻‍♂️
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We hope your weekends were rich and filled to the brim with loved ones!

    🔆tell me about your weekend! What fun things did my fit family do this weekend?! 🍓
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    We got to spend some time with family & friends, serve at our church, and play in an open field tonight🤸🏻‍♂️
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    We hope your weekends were rich and filled to the brim with loved ones!

    27 2 1 hour ago
    Julius had surf camp yesterday and it was so so good! He got along well with his instructor and they had a blast catching waves after waves. He even stood up on his own and didn’t fell into the water. He controlled his balance and lie back down on his board. He once again prove us that he can do anything! “Can’t” doesn’t exist in him. He is amazing! Thank you so much @wavesofimpact for such a fun surfing day!

    Julius had surf camp yesterday and it was so so good! He got along well with his instructor and they had a blast catching waves after waves. He even stood up on his own and didn’t fell into the water. He controlled his balance and lie back down on his board. He once again prove us that he can do anything! “Can’t” doesn’t exist in him. He is amazing! Thank you so much @wavesofimpact for such a fun surfing day!

    22 3 1 hour ago
    With instructor. We had a blast! 🏄🏽🤙🏼

    With instructor. We had a blast! 🏄🏽🤙🏼

    9 1 2 hours ago
    Look at me standing on my own! I didn’t fell into the water either🤙🏼

    Look at me standing on my own! I didn’t fell into the water either🤙🏼

    10 1 2 hours ago
    First surf camp of 2019! It was awesome! Me and my instructor caught so many waves! I even got to surf with @_ella_grace_vollmer ! It was so fun surfing side by side 🏄🏽‍♀️ 🏄🏽

    First surf camp of 2019! It was awesome! Me and my instructor caught so many waves! I even got to surf with @_ella_grace_vollmer ! It was so fun surfing side by side 🏄🏽‍♀️ 🏄🏽

    9 1 2 hours ago
    It has been a while since our last research update, but we have received some very important news regarding the progress of our endeavor.  On Tuesday morning, we met with the Director of Development for Dr. Curiel’s laboratory at Washington University in St. Louis School of Medicine.
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HIGHLIGHT SUMMARY:
Our research has determined that a portion of the CAMSAP1 gene is 100% necessary for an organism to survive. The mice from The Jackson Laboratory were shipped to the laboratory at WashU. These mice were then bred with hopes of creating a mouse that had 2 mutated copies of the CAMSAP1 gene. After testing the DNA of all off-spring, none were found to have two mutated copies.  However, additional carriers of a CAMSAP1 gene mutation were identified. Because of the location of where the “cuts” were made on the CAMSAP1 gene in our founder mice, homozygous mice (mice carrying 2 copies of the knocked-out/mutated CAMSAP1 gene) did not survive embryogenesis. Hence, this means that a portion of CAMSAP1 is critical for life. See our link in bio to learn more about the science and genetics with this update. 🧬 .
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#LandonsLeague #CAMSAP1 #findacure #mousemodel #epilepsy #epilepsysucks #lissencephaly #smoothbrain #CP #cerebralpalsy #corticalvisionimpairment #CVI #microtubule #microtubules #supportmedicalresearch #research #thejacksonlaboratory #WashU #stlouis #neverlosehope #specialneedsjourney #specialneedsfamily

    It has been a while since our last research update, but we have received some very important news regarding the progress of our endeavor. On Tuesday morning, we met with the Director of Development for Dr. Curiel’s laboratory at Washington University in St. Louis School of Medicine.

    HIGHLIGHT SUMMARY:
    Our research has determined that a portion of the CAMSAP1 gene is 100% necessary for an organism to survive. The mice from The Jackson Laboratory were shipped to the laboratory at WashU. These mice were then bred with hopes of creating a mouse that had 2 mutated copies of the CAMSAP1 gene. After testing the DNA of all off-spring, none were found to have two mutated copies. However, additional carriers of a CAMSAP1 gene mutation were identified. Because of the location of where the “cuts” were made on the CAMSAP1 gene in our founder mice, homozygous mice (mice carrying 2 copies of the knocked-out/mutated CAMSAP1 gene) did not survive embryogenesis. Hence, this means that a portion of CAMSAP1 is critical for life. See our link in bio to learn more about the science and genetics with this update. 🧬 .
    .
    #LandonsLeague #CAMSAP1 #findacure #mousemodel #epilepsy #epilepsysucks #lissencephaly #smoothbrain #CP #cerebralpalsy #corticalvisionimpairment #CVI #microtubule #microtubules #supportmedicalresearch #research #thejacksonlaboratory #WashU #stlouis #neverlosehope #specialneedsjourney #specialneedsfamily

    18 0 2 hours ago

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    Y’all check this out! The Exodus 17:12 Project will be hosting an auction coming up to fundraise for our programs. Thank you so much to @joieandcobtq for this donation. This backpack will be featured in our auction and retails for $400. If you’re interested in this backpack make sure you stay tuned for more details on our auction. Thank you again to Joie + Co for their generous donation! #fundraising #donate #generous #specialneeds #specialneedskids #specialneedsfamily

    Y’all check this out! The Exodus 17:12 Project will be hosting an auction coming up to fundraise for our programs. Thank you so much to @joieandcobtq for this donation. This backpack will be featured in our auction and retails for $400. If you’re interested in this backpack make sure you stay tuned for more details on our auction. Thank you again to Joie + Co for their generous donation! #fundraising #donate #generous #specialneeds #specialneedskids #specialneedsfamily

    3 0 2 hours ago
    May 19th - 25th is Tracheostomy Awareness week. If you understand anything about advocacy, you know that as parents, we have no other choice. It’s a requirement and an obligation to ensure our gal’s needs are met. So we’ve resolved to speak up, speak out and never end the day with regret.
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There is nothing that would please my introverted heart more than to keep Harper our sweet little secret, carry her around like a baby forever and explain nothing to no one. Except that I am acutely aware of the fact that this big, messy, upside down world cannot afford to miss out on an opportunity to witness the resilient human spirit in action, learn, adapt, change and grow.
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I will leave you with this cute picture of Harper getting her tan on. Tomorrow, I will introduce our “3rd child,” the TRACH. 💕
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#trachbaby #trachiniteasy #onebreathatatime #trachawarenessweek #strokeofluck #cpawareness #lifeafternicu #preemieawareness #specialneedskids #specialneedssiblings #specialneedsfamily

    May 19th - 25th is Tracheostomy Awareness week. If you understand anything about advocacy, you know that as parents, we have no other choice. It’s a requirement and an obligation to ensure our gal’s needs are met. So we’ve resolved to speak up, speak out and never end the day with regret.
    .
    There is nothing that would please my introverted heart more than to keep Harper our sweet little secret, carry her around like a baby forever and explain nothing to no one. Except that I am acutely aware of the fact that this big, messy, upside down world cannot afford to miss out on an opportunity to witness the resilient human spirit in action, learn, adapt, change and grow.
    .
    I will leave you with this cute picture of Harper getting her tan on. Tomorrow, I will introduce our “3rd child,” the TRACH. 💕
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    #trachbaby #trachiniteasy #onebreathatatime #trachawarenessweek #strokeofluck #cpawareness #lifeafternicu #preemieawareness #specialneedskids #specialneedssiblings #specialneedsfamily

    20 0 2 hours ago

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    Some parents shoo their kiddos out of the kitchen, I like sharing the kitchen with mine. While Mimi and I made birthday cake protein balls, we gave Mikah a bowl and some yogurt. He had fun mixing, and it also served as a therapy session. Win-win ❤️

    Some parents shoo their kiddos out of the kitchen, I like sharing the kitchen with mine. While Mimi and I made birthday cake protein balls, we gave Mikah a bowl and some yogurt. He had fun mixing, and it also served as a therapy session. Win-win ❤️

    7 3 4 hours ago
    So the last couple of months have been challenging when it comes to eating for Keane. He's always been a "picky eater," but he still had a good variety of foods that he would eat - his favorites being the foods we wish weren't his favorites, of course. But as of late, he had been slowly denying even his favorites. It's gotten to the point where some days, he would eat bagels for all 3 meals. Now, he won't even eat the entire bagel, he will only pick off the top of it. Chips and popcorn always go down easy, but naturally, we don't want him filling up on non-nutritional foods. 
So what do we do? Well first, we have to rule out anything medical. He will be going to the dentist soon to make sure it's not an issue with his teeth or his mouth. After that has been checked out, if it's not anything medical, we will then start to target possible sensory issues. Is this aversion due to textures? Smells? Tastes?  What can we do to overcome those aversions? Then, we will start implementing strategies to expose him to more foods in a fun manner, ie: songs, games, videos, etc. We've taken a food course before and he enjoyed it. He even licked and played with foods that he typically wouldn't. So I think trying one of those classes again might be helpful once again. 
Today I got him to eat some @kraft_macandcheese and hopefully he continues to eat it! That's one food we can add back into my arsenal. #thankgoodness 
We will keep you guys updated on his progress, and let you know what strategies we're trying, what worked and what did not. 
#autism #asd #autismacceptance #autismcommunity #autismparents #autismawareness #autismfamily #autismyeg #autismparent #autismlove #autismmom #autismdad #autismlife #autismspectrumdisorder #autismontheroad #autismsiblings #autismrocks #specialneedsfamily #preverbal #specialneeds #sensoryprocessingdisorder #sensoryseeker #yeg #alberta #foodaversions #food

    So the last couple of months have been challenging when it comes to eating for Keane. He's always been a "picky eater," but he still had a good variety of foods that he would eat - his favorites being the foods we wish weren't his favorites, of course. But as of late, he had been slowly denying even his favorites. It's gotten to the point where some days, he would eat bagels for all 3 meals. Now, he won't even eat the entire bagel, he will only pick off the top of it. Chips and popcorn always go down easy, but naturally, we don't want him filling up on non-nutritional foods.
    So what do we do? Well first, we have to rule out anything medical. He will be going to the dentist soon to make sure it's not an issue with his teeth or his mouth. After that has been checked out, if it's not anything medical, we will then start to target possible sensory issues. Is this aversion due to textures? Smells? Tastes? What can we do to overcome those aversions? Then, we will start implementing strategies to expose him to more foods in a fun manner, ie: songs, games, videos, etc. We've taken a food course before and he enjoyed it. He even licked and played with foods that he typically wouldn't. So I think trying one of those classes again might be helpful once again.
    Today I got him to eat some @kraft_macandcheese and hopefully he continues to eat it! That's one food we can add back into my arsenal. #thankgoodness
    We will keep you guys updated on his progress, and let you know what strategies we're trying, what worked and what did not.
    #autism #asd #autismacceptance #autismcommunity #autismparents #autismawareness #autismfamily #autismyeg #autismparent #autismlove #autismmom #autismdad #autismlife #autismspectrumdisorder #autismontheroad #autismsiblings #autismrocks #specialneedsfamily #preverbal #specialneeds #sensoryprocessingdisorder #sensoryseeker #yeg #alberta #foodaversions #food

    27 4 5 hours ago
    This is one of the weeks I have dreaded for a long time. When you have a child with additional needs you learn a whole new level of trust. You have to find people who you hope can love and care for your child like you do or as best as possible. When we found Jacob’s school we knew straight away that this was where he should be, this was where he was safe and he would be allowed to achieve all and more he is capable of. This was a place where he would be loved, and he has been so loved there but it’s time to move on. My heart is already aching and I know this week will be full of random tears and moments of both sadness and joy that we had this journey. So change is ahead but what we leave behind has been good. So so good x #thankyou #changeahead #specialneeds #specialneedsfamily #specialneedsparent #specialneedskids #specialneedsparents #cerebralpalsy #changeisgood #changeishere #changeiscoming #changeishard

    This is one of the weeks I have dreaded for a long time. When you have a child with additional needs you learn a whole new level of trust. You have to find people who you hope can love and care for your child like you do or as best as possible. When we found Jacob’s school we knew straight away that this was where he should be, this was where he was safe and he would be allowed to achieve all and more he is capable of. This was a place where he would be loved, and he has been so loved there but it’s time to move on. My heart is already aching and I know this week will be full of random tears and moments of both sadness and joy that we had this journey. So change is ahead but what we leave behind has been good. So so good x #thankyou #changeahead #specialneeds #specialneedsfamily #specialneedsparent #specialneedskids #specialneedsparents #cerebralpalsy #changeisgood #changeishere #changeiscoming #changeishard

    13 0 5 hours ago
    It was her favorite park. .

Although she spent most of her adult life in NYC, my mother was always a woman who LOVED open spaces and FLOWERS.  Stories about her own childhood in the campo (the countryside in the Dominican Republic) were very much apart of my own childhood.  Before my own in-person experience of the Dominican Republic ever took place, I had already painted images and imagined experiences that felt REAL....all thanks to her ❤️
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Rewind to the 80s & 90s....and every spring, when Fort Tryon Park would reach its "full bloom" state, our family would always take a leisurely stroll over to "el parque cabrini" ”en la parte buena." Though not a flower power girl myself (not then, and not now), I couldn't help noticing my mother's enjoyment.  She loved every flower, every color....stopping to admire every single one.  My grandmother, who lived in the Dominican Republic (and only visited us in May), was also a willing participant in our walks around this park.  And like my mother, she was a fan of every flower, of every color...stopping to admire every single one. 😊
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And then, just as the seasons change, and the flowers come and go, life happened and the lives of these women transcended.  And now, every spring (and a couple of more times throughout the favorable weather months), I find myself making the trip over to this park....retracing steps and memories that somehow soothe the parts of me that still intensely MISS.....finding so much comfort in the stories that I've shared with my kiddos....stories about the woman who LOVED me, the spring breeze, and the BRIGHTLY colored flowers.
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#latinamom #forttryonpark #washingtonheights #dominicana #imissmymom #ilovemymom #family #specialneedsfamily

    It was her favorite park. .

    Although she spent most of her adult life in NYC, my mother was always a woman who LOVED open spaces and FLOWERS. Stories about her own childhood in the campo (the countryside in the Dominican Republic) were very much apart of my own childhood. Before my own in-person experience of the Dominican Republic ever took place, I had already painted images and imagined experiences that felt REAL....all thanks to her ❤️
    .

    Rewind to the 80s & 90s....and every spring, when Fort Tryon Park would reach its "full bloom" state, our family would always take a leisurely stroll over to "el parque cabrini" ”en la parte buena." Though not a flower power girl myself (not then, and not now), I couldn't help noticing my mother's enjoyment. She loved every flower, every color....stopping to admire every single one. My grandmother, who lived in the Dominican Republic (and only visited us in May), was also a willing participant in our walks around this park. And like my mother, she was a fan of every flower, of every color...stopping to admire every single one. 😊
    .

    And then, just as the seasons change, and the flowers come and go, life happened and the lives of these women transcended. And now, every spring (and a couple of more times throughout the favorable weather months), I find myself making the trip over to this park....retracing steps and memories that somehow soothe the parts of me that still intensely MISS.....finding so much comfort in the stories that I've shared with my kiddos....stories about the woman who LOVED me, the spring breeze, and the BRIGHTLY colored flowers.
    .

    #latinamom #forttryonpark #washingtonheights #dominicana #imissmymom #ilovemymom #family #specialneedsfamily

    10 0 6 hours ago

Top #specialneedsfamily posts

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    Beautiful testimony of a father’s love from @2dollopsofautism: “Too often dads don’t get enough credit. I try to let my husband know how much we love and appreciate him for all that he does. This post is for him, and all the other Autism Dads out there who are working long hours so their wife can stay home to care for the kids. The Autism dads who come home tired and still help with the kids or clean the house. The Autism dads who wake up and sit with their son because he’s having a rough night. The Autism dad who lets his wife sleep because she’s worn out, even if it means he only gets two hours of sleep before he leaves for work. The Autism dads who take time off from work to come to every major appointment and every therapy they can. The Autism dad who is at every IEP meeting.

This man of mine does so much for his boys. He’s come a long way on this journey as well. We tend to forget about dad’s feelings. He’s had to give up on dreams he’s had for our boys. He went through denial...twice. He is an amazing father and I don’t tell him this nearly enough. And I should. So if you have an Autism Autism dad in your corner, tell them how much you appreciate all they do.

To you, Hammy, I adore you and I love you. I wouldn’t be the person I am today if not for you. ❤️”
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#Autismdad #autismdaddy #specialneedsfamily  #specialneedsparent 
#blackfather #blackfathers #blackfatherhood #blackfamilies #blackfamily #blackboyjoy #fatherhood #dadsofig #momsofig #dadlife #daddylife #mommylife #momsofinstagram #momlife #dadsofinstagram #dadgoals #dadmode #dadstagram #familygoals

    Beautiful testimony of a father’s love from @2dollopsofautism : “Too often dads don’t get enough credit. I try to let my husband know how much we love and appreciate him for all that he does. This post is for him, and all the other Autism Dads out there who are working long hours so their wife can stay home to care for the kids. The Autism dads who come home tired and still help with the kids or clean the house. The Autism dads who wake up and sit with their son because he’s having a rough night. The Autism dad who lets his wife sleep because she’s worn out, even if it means he only gets two hours of sleep before he leaves for work. The Autism dads who take time off from work to come to every major appointment and every therapy they can. The Autism dad who is at every IEP meeting.

    This man of mine does so much for his boys. He’s come a long way on this journey as well. We tend to forget about dad’s feelings. He’s had to give up on dreams he’s had for our boys. He went through denial...twice. He is an amazing father and I don’t tell him this nearly enough. And I should. So if you have an Autism Autism dad in your corner, tell them how much you appreciate all they do.

    To you, Hammy, I adore you and I love you. I wouldn’t be the person I am today if not for you. ❤️”
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    #Autismdad #autismdaddy #specialneedsfamily #specialneedsparent
    #blackfather #blackfathers #blackfatherhood #blackfamilies #blackfamily #blackboyjoy #fatherhood #dadsofig #momsofig #dadlife #daddylife #mommylife #momsofinstagram #momlife #dadsofinstagram #dadgoals #dadmode #dadstagram #familygoals

    1,065 30 12 April, 2019

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    This might not seem like much but in our world this is HUGE!!!!!
Hadley is standing on her own again!! ❤️
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She has been working hard in the pool and at physical therapy to get stronger so this day could happen. .

It’s been 10 long weeks since Hadley was last walking when she fractured her femur and had Surgery. She amazes me with her fight and determination to walk again. I am so in awe of this amazing girl!! She simply never gives up! #MYHERO #onestepatatime #smallvictories #iamsoproud #nevergiveup #hadleysoiadventure #osteogenesisimperfecta

    This might not seem like much but in our world this is HUGE!!!!!
    Hadley is standing on her own again!! ❤️
    .

    She has been working hard in the pool and at physical therapy to get stronger so this day could happen. .

    It’s been 10 long weeks since Hadley was last walking when she fractured her femur and had Surgery. She amazes me with her fight and determination to walk again. I am so in awe of this amazing girl!! She simply never gives up! #MYHERO #onestepatatime #smallvictories #iamsoproud #nevergiveup #hadleysoiadventure #osteogenesisimperfecta

    1,884 96 26 April, 2019
    She rode the bus to school today for the first time (see my stories) and I felt like my heart was going to literally explode. 😩💔 It evoked ALL the mama-feels and inner dialogues — ‘make it slow down’, ‘she’s only THREE!’ ‘am I really letting her drive off with a stranger when she has no way to defend herself or verbalize to me if something happens?’... I could go on and on.

And while I wallowed in my mama-drama-feels and worries, SHE had nothing but a brave face, full of smiles and faith and radiance, per usual.

I love this little human so, so much! She just keeps teaching me all the things. ❤️ #littlecharlotterose #congenitaldisorderofglycosylation (Dress details linked up in the LIKEtoKNOW.it app under my name 💓 http://liketk.it/2Bd4T #liketkit @liketoknow.it #LTKfamily #LTKkids)

    She rode the bus to school today for the first time (see my stories) and I felt like my heart was going to literally explode. 😩💔 It evoked ALL the mama-feels and inner dialogues — ‘make it slow down’, ‘she’s only THREE!’ ‘am I really letting her drive off with a stranger when she has no way to defend herself or verbalize to me if something happens?’... I could go on and on.

    And while I wallowed in my mama-drama-feels and worries, SHE had nothing but a brave face, full of smiles and faith and radiance, per usual.

    I love this little human so, so much! She just keeps teaching me all the things. ❤️ #littlecharlotterose #congenitaldisorderofglycosylation (Dress details linked up in the LIKEtoKNOW.it app under my name 💓 http://liketk.it/2Bd4T #liketkit @liketoknow.it #LTKfamily #LTKkids )

    5,411 112 17 April, 2019
    I could write a lot of cliché words strung together today, something about resurrection and redemption and the Joy of the Lord. Something about being risen and becoming whole. But the truth is, those sentences don’t make sense in my head the way they once did. My heart feels disconnected to what was once a huge part of me, a huge part of us, and them.
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Something shifted, gradually, but forcefully. Somewhere between begging for her to be able to breathe and believing for a surgery through her ribs to be avoided and finding strength amid the trauma of readmissions and letting peace seep in as parents and children cry in the PICU...something shifted.
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And though my heart still feels sure that I don’t walk this alone. Though my spirit is hopeful for more than is earthly possible. Though joy certainly is my strength. I do not know any more than that.
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Our world is a broken place. Broken people, broken hearts, broken promises and broken hope. And though many would like to pray wholeness and healing over it all, I have come to see the most beauty resides precisely atop these broken parts. If you shy away from brokenness, you shy away compassion and grace and empathy. The holes we each carry within us, whether physical defects or emotional or mental ones, these holes do not need to be filled. Beauty resides there. And we can live wholly with holes. If fact, sometimes, the opening that is not meant to be there, the extra bit of you or the piece that is missing, is precisely what is keeping you alive. It is precisely what makes you you.
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Having holes does not make you unwhole. Being broken does not deny you a path to holiness.
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Jesus still walked out of the tomb marked, scarred.
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And of course we all will walk out marked, scarred, too.

    I could write a lot of cliché words strung together today, something about resurrection and redemption and the Joy of the Lord. Something about being risen and becoming whole. But the truth is, those sentences don’t make sense in my head the way they once did. My heart feels disconnected to what was once a huge part of me, a huge part of us, and them.
    .
    Something shifted, gradually, but forcefully. Somewhere between begging for her to be able to breathe and believing for a surgery through her ribs to be avoided and finding strength amid the trauma of readmissions and letting peace seep in as parents and children cry in the PICU...something shifted.
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    And though my heart still feels sure that I don’t walk this alone. Though my spirit is hopeful for more than is earthly possible. Though joy certainly is my strength. I do not know any more than that.
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    Our world is a broken place. Broken people, broken hearts, broken promises and broken hope. And though many would like to pray wholeness and healing over it all, I have come to see the most beauty resides precisely atop these broken parts. If you shy away from brokenness, you shy away compassion and grace and empathy. The holes we each carry within us, whether physical defects or emotional or mental ones, these holes do not need to be filled. Beauty resides there. And we can live wholly with holes. If fact, sometimes, the opening that is not meant to be there, the extra bit of you or the piece that is missing, is precisely what is keeping you alive. It is precisely what makes you you.
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    Having holes does not make you unwhole. Being broken does not deny you a path to holiness.
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    Jesus still walked out of the tomb marked, scarred.
    .
    And of course we all will walk out marked, scarred, too.

    725 52 21 April, 2019