#CCAM Instagram Photos & Videos

CCAM - 13.9k posts

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    I walked into the office to this little treat! Has it been 10 years already?! Where does the time go?⠀
⠀
It’s amazing to see my goals and accomplishments in numbers. I never thought I could do it but I am glad for all the friends and mentors I have met in my life along the way. ⠀
⠀
#success #ccam #10years #dreams #bossbabe #hardword #lovelife #careergoals

    I walked into the office to this little treat! Has it been 10 years already?! Where does the time go?⠀

    It’s amazing to see my goals and accomplishments in numbers. I never thought I could do it but I am glad for all the friends and mentors I have met in my life along the way. ⠀

    #success #ccam #10years #dreams #bossbabe #hardword #lovelife #careergoals

    19 3 16 April, 2019
    Beach day in Playa del Carmen ~ ready to do some yoga :)

    Beach day in Playa del Carmen ~ ready to do some yoga :)

    59 3 16 April, 2019

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    無事慣らし保育も進んだので、明日からついに断乳。
長男と二歳差だったので、ここ4年、5時間続けて寝たのなんて数えるぐらい。。
やっと解放される嬉しさもあったけど、今押し寄せてるのは寂しさ…😭
少しは食べて寝てが増えるかなぁ。
 次女が一番長く授乳したけど、生後一ヶ月頃にようやく初めて授乳できた嬉しさは今でも忘れないよ。
明日バイバイしようね。
.
長女は何でそんなに胸たれてるのと聞いてくるけど、声を大にして言いたい。
君たちのおかげだよ😘
#1歳10ヵ月#断乳#明日から#今までありがとう#きっとしぼむよね?#ccam#先天性嚢胞状腺腫様形成異常

    無事慣らし保育も進んだので、明日からついに断乳。
    長男と二歳差だったので、ここ4年、5時間続けて寝たのなんて数えるぐらい。。
    やっと解放される嬉しさもあったけど、今押し寄せてるのは寂しさ…😭
    少しは食べて寝てが増えるかなぁ。
    次女が一番長く授乳したけど、生後一ヶ月頃にようやく初めて授乳できた嬉しさは今でも忘れないよ。
    明日バイバイしようね。
    .
    長女は何でそんなに胸たれてるのと聞いてくるけど、声を大にして言いたい。
    君たちのおかげだよ😘
    #1歳10ヵ月 #断乳 #明日から #今までありがとう #きっとしぼむよね#ccam #先天性嚢胞状腺腫様形成異常

    30 7 16 April, 2019
    Ultimo día de entrenamiento en Osorno Chile, tema ECOGRAFÍA DOPPLER, nos tocó entrenar al equipazo de médicos de Cooprinsem, listos para diagnóstico de no gestación a 21 días. Muchas gracias por su preferencia y felicitaciones por su excelente organización!! #bovinosvirtual #CCAM #invitroméxico #cooprinsem

    Ultimo día de entrenamiento en Osorno Chile, tema ECOGRAFÍA DOPPLER, nos tocó entrenar al equipazo de médicos de Cooprinsem, listos para diagnóstico de no gestación a 21 días. Muchas gracias por su preferencia y felicitaciones por su excelente organización!! #bovinosvirtual #CCAM #invitroméxico #cooprinsem

    43 0 15 April, 2019
    We were released from the hospital around 12pm yetserday. With over 2 hour drive home, i just was too tired and home sick to update. But were here. Thanks to my mom for always helping me with Emalie so i can focus on getting Marina well enough to come  home. also for all of marinas essentials so we wouldnt have to hop off the free way to pick up her equipment. And thanks to my in laws for the 2.5 ride home and visiting throughout her stay. And snacks lol. 
I honestly Couldnt ask for better people to help me through what jeremy and i have been going through since marinas birth. 
Were in a good place. Shes getting better. and has minimal pain. Probably just sore. 
Thank you EVERYONE for your messages, comments, prayers, support! We needed it and appreciate it! 
God is good!
#blessed #CPAMBABY #ccam #cpam #chla

    We were released from the hospital around 12pm yetserday. With over 2 hour drive home, i just was too tired and home sick to update. But were here. Thanks to my mom for always helping me with Emalie so i can focus on getting Marina well enough to come home. also for all of marinas essentials so we wouldnt have to hop off the free way to pick up her equipment. And thanks to my in laws for the 2.5 ride home and visiting throughout her stay. And snacks lol.
    I honestly Couldnt ask for better people to help me through what jeremy and i have been going through since marinas birth.
    Were in a good place. Shes getting better. and has minimal pain. Probably just sore.
    Thank you EVERYONE for your messages, comments, prayers, support! We needed it and appreciate it!
    God is good!
    #blessed #CPAMBABY #ccam #cpam #chla

    28 3 14 April, 2019

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    気づけば3ヶ月❁
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昨日ギリギリ桜を見に行けましたが爆睡で写真撮れず❀
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来年いっぱい撮りましょうかね
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来週も月1#ccamの診察
赤ちゃんの時より肺も大きくなってきているせいか心なしかccamも大きくなっていて結局体が大きくなったら手術で取らなくてはならないかも😑
.
こんな小さな体に傷を付けてしまうのは心が痛むけど
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これからの長い人生健康に育っていくには仕方がない事なんだろうなぁ〜
.
来週の診察が憂鬱です

消えることはないだろうけど
悪さをしないことを祈る𓇼
.
#3か月 #1月生まれ #12w6d #baby #girl #ccam #あかちゃんのいる暮らし #親バカ#新米ママ

    気づけば3ヶ月❁
    .
    昨日ギリギリ桜を見に行けましたが爆睡で写真撮れず❀
    .
    来年いっぱい撮りましょうかね
    .
    来週も月1#ccamの診察
    赤ちゃんの時より肺も大きくなってきているせいか心なしかccamも大きくなっていて結局体が大きくなったら手術で取らなくてはならないかも😑
    .
    こんな小さな体に傷を付けてしまうのは心が痛むけど
    .
    これからの長い人生健康に育っていくには仕方がない事なんだろうなぁ〜
    .
    来週の診察が憂鬱です

    消えることはないだろうけど
    悪さをしないことを祈る𓇼
    .
    #3か月 #1月生まれ #12w6d #baby #girl #ccam #あかちゃんのいる暮らし #親バカ #新米ママ

    15 2 14 April, 2019
    UPDATE: 
currently awake but im ignoring her in hopes shell go back to sleep. I already gave her two 2oz  bottles.  She threw one back at me once i layed down. Im just trying not to wake out neighbor.

She is managing her pain 2.5 days post op, on oral baby tylenol. Ive forgotten SEVERAL times what side incision is on and she has yet to complain. 
On 1/4 LPM for sleep from now until her next sleep study in september. Ordered by her pulmonologist as a developmental precaution. 
Has an xray scheduled in the morning. Results will either send us home or back on the chest tube. 
HR has been at an all time low since admitted, between 105 and 110 BPM
RR is beteen 25 and 30
SpO2 is at 100. She has assistance with the 1/4 Liter .
#blessed #CPAMBABY #ccam #cpam #chla

    UPDATE:
    currently awake but im ignoring her in hopes shell go back to sleep. I already gave her two 2oz bottles. She threw one back at me once i layed down. Im just trying not to wake out neighbor.

    She is managing her pain 2.5 days post op, on oral baby tylenol. Ive forgotten SEVERAL times what side incision is on and she has yet to complain.
    On 1/4 LPM for sleep from now until her next sleep study in september. Ordered by her pulmonologist as a developmental precaution.
    Has an xray scheduled in the morning. Results will either send us home or back on the chest tube.
    HR has been at an all time low since admitted, between 105 and 110 BPM
    RR is beteen 25 and 30
    SpO2 is at 100. She has assistance with the 1/4 Liter .
    #blessed #CPAMBABY #ccam #cpam #chla

    15 0 13 April, 2019
    What a journey it’s been!

At 20 weeks pregnant, we got the devastating news our baby had a benign mass on her lung, called a Congenital Pulmonary Airway Malformation (#CPAM, or sometimes called #CCAM). We knew she’d need surgery at some point, but we weren’t sure when. 
Today, at 6.5 months old, Peyton underwent surgery to remove (what we now know as) a cluster of tiny cysts. And no, this is not related to Cystic Fibrosis at all. It will never grow back, but it was recommended we remove it because these vulnerable cells could be attacked later in life & turn cancerous. 
The surgery went perfectly and she is recovering well. Thank you so much to everyone that has reached out to let us know you’re praying for our little warrior. She is so tough & I can’t wait to tell her when she gets older how strong she was! We are finally CPAM free! 🙌🏼

    What a journey it’s been!

    At 20 weeks pregnant, we got the devastating news our baby had a benign mass on her lung, called a Congenital Pulmonary Airway Malformation ( #CPAM , or sometimes called #CCAM ). We knew she’d need surgery at some point, but we weren’t sure when.
    Today, at 6.5 months old, Peyton underwent surgery to remove (what we now know as) a cluster of tiny cysts. And no, this is not related to Cystic Fibrosis at all. It will never grow back, but it was recommended we remove it because these vulnerable cells could be attacked later in life & turn cancerous.
    The surgery went perfectly and she is recovering well. Thank you so much to everyone that has reached out to let us know you’re praying for our little warrior. She is so tough & I can’t wait to tell her when she gets older how strong she was! We are finally CPAM free! 🙌🏼

    286 31 12 April, 2019
    So this girl went ahead and ruined her chest tube by rolling over onto it. Lucky epidural kept that from hurting. They are going to readjust it. Clean and change the dressing.  But shes pretty annoyed with the fact that i rolled her back onto her back. Shes been 3 hours with out suction, wont knoe how well shes doing until the xray in the morning. 
GOOD NEWS: 
Even though someone placed an order for oxygen at night , i insisted they only do it if she desats . Shes been at above 98 ALL DAY! So no cannula for my girl. 
No more fevers, at least for now.. #blessed #CPAMBABY #ccam #cpam #chla

    So this girl went ahead and ruined her chest tube by rolling over onto it. Lucky epidural kept that from hurting. They are going to readjust it. Clean and change the dressing. But shes pretty annoyed with the fact that i rolled her back onto her back. Shes been 3 hours with out suction, wont knoe how well shes doing until the xray in the morning.
    GOOD NEWS:
    Even though someone placed an order for oxygen at night , i insisted they only do it if she desats . Shes been at above 98 ALL DAY! So no cannula for my girl.
    No more fevers, at least for now.. #blessed #CPAMBABY #ccam #cpam #chla

    17 1 12 April, 2019
    記録
長男 4月11日小学校入学式
長女4月10日中学校入学式
中学校の規則が厳しいらしくスカートの丈が少しでも短いと作り直しを言われた子もいたみたい💦
中学校入学まえに術後10年を迎えました🙌
日赤の小児外科に検診❗️
Drにあった瞬間、お❗️背も高いし問題ないね❗️左右の体のバランスもOK❗️傷跡も綺麗❗️と言ってもらいました🙌成長に遅れやバランスわるくなったりすることがあると言われてたから一安心🌟
さらに❗️❗️なんとー❗️❗️来年の検診で最後にしていいそぉです❤️
中学校はすぐお隣の小学校と一緒になるのだけど 入学前から友達になったりLINEきたり、すごい世の中すぎて親がついてけません💦
#先天性嚢胞性腺腫様奇形 
#ccam 
#術後10年🙌
こんなに元気に学校いったりできるとは思ってなかったけど 毎日学校にも通えてスイミングも1年で1級まで上達❗️中学生なるから辞めますが🏊‍♂️
土日も平日も、遊びに夢中で全然家にいませーん😄青春真っ最中❤️
長男もスイミング1年で息継ぎまでできるよーになりクロール特訓中❗️夏までに目指せ25メートル❗️❗️

    記録
    長男 4月11日小学校入学式
    長女4月10日中学校入学式
    中学校の規則が厳しいらしくスカートの丈が少しでも短いと作り直しを言われた子もいたみたい💦
    中学校入学まえに術後10年を迎えました🙌
    日赤の小児外科に検診❗️
    Drにあった瞬間、お❗️背も高いし問題ないね❗️左右の体のバランスもOK❗️傷跡も綺麗❗️と言ってもらいました🙌成長に遅れやバランスわるくなったりすることがあると言われてたから一安心🌟
    さらに❗️❗️なんとー❗️❗️来年の検診で最後にしていいそぉです❤️
    中学校はすぐお隣の小学校と一緒になるのだけど 入学前から友達になったりLINEきたり、すごい世の中すぎて親がついてけません💦
    #先天性嚢胞性腺腫様奇形
    #ccam
    #術後10年 🙌
    こんなに元気に学校いったりできるとは思ってなかったけど 毎日学校にも通えてスイミングも1年で1級まで上達❗️中学生なるから辞めますが🏊‍♂️
    土日も平日も、遊びに夢中で全然家にいませーん😄青春真っ最中❤️
    長男もスイミング1年で息継ぎまでできるよーになりクロール特訓中❗️夏までに目指せ25メートル❗️❗️

    35 18 12 April, 2019

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    Today was my last doctors appointment. 
This pregnancy took us for a loop.
For the past 20 weeks I've had more doctors appointments than I can remember. I've seen more doctors and specialists than I can name. I've had more ultrasounds that I can count. 
I went from a having a normal pregancy to being in the super high risk range. Baby #2 developed a complex and rare condition that put him at risk for congenital heart failure while in utero. Baby #2 developed a large mass in his lungs that pushed his heart completely to the right lung cavity and restricted the growth of his lungs. 
Week after week we had anywhere from two to six doctors appointments in order to keep a close eye on the situation. Medically there was nothing that could be done but to wait and see.

So waiting is what we did. We watched the mass grow. We watched it shrink. We watched it grow even more. Week after week. 
After 20 weeks of waiting and watching, we are happy to report that his heart is finally back in the correct cavity and his lungs have developed. 
THIS BABY IS A TRUE CHAMPION.  He literally fought for his life. We are beyond ecstatic to finally meet him. He has survived the worst possible outcome and will continue to be a fighter. 
I am thankful for all my peeps who were supportive to us. We really appreciate the big and small gestures you all made . 
This weekend I know you'll all join in with us when baby arrives and we can all say THE CHAMP IS HERE !!!! ☻☻☻
#cpam #bps #ccam

    Today was my last doctors appointment.
    This pregnancy took us for a loop.
    For the past 20 weeks I've had more doctors appointments than I can remember. I've seen more doctors and specialists than I can name. I've had more ultrasounds that I can count.
    I went from a having a normal pregancy to being in the super high risk range. Baby #2 developed a complex and rare condition that put him at risk for congenital heart failure while in utero. Baby #2 developed a large mass in his lungs that pushed his heart completely to the right lung cavity and restricted the growth of his lungs.
    Week after week we had anywhere from two to six doctors appointments in order to keep a close eye on the situation. Medically there was nothing that could be done but to wait and see.

    So waiting is what we did. We watched the mass grow. We watched it shrink. We watched it grow even more. Week after week.
    After 20 weeks of waiting and watching, we are happy to report that his heart is finally back in the correct cavity and his lungs have developed.
    THIS BABY IS A TRUE CHAMPION. He literally fought for his life. We are beyond ecstatic to finally meet him. He has survived the worst possible outcome and will continue to be a fighter.
    I am thankful for all my peeps who were supportive to us. We really appreciate the big and small gestures you all made .
    This weekend I know you'll all join in with us when baby arrives and we can all say THE CHAMP IS HERE !!!! ☻☻☻
    #cpam #bps #ccam

    33 7 11 April, 2019
    UPDATE: originally marina was put on 2 Liter high flow nasal cannula to maintain a 98 SpO2 level, now shes on 1/8 of a Liter and is maintaining herself at 100!! My girl is doing so well. She had her first bottle of formula at 2 AM.
She had an Epidural placed in to her upper back right below the shoulders,  that is working great!  Absolutely no pain at the incision or the drain tube. BUT she is extremely restless. For some reason (my guess the cannula was placed in an awkward position) she gets really irritable to a point where she begins to start thrashing in the bed. We had to restrain one arm to the bed and had to sock the other arm with the IV to keep her from ripping out the Cannula or scratching her face. They had to board her left foot to maintain a healthy IV, the last thing she needs is to ruin another IV after multiple failed ones. 
GOOD NEWS:
Drain output is low 
Urine output is good
Oxygen is set at 1/8 LPM
SpO2 is at 100
HR is in the 120s
BP is a little better now. 
Since we changed the position of the cannula, shes less irritated. 
PLANS: 
Remove catheter in a few hours. 
Remove her O2 assistance by end of stay
Remove epidural and manage pain with IV tylenol  by mid day tomorrow 
GOD IS GOOD.

#blessed #CPAMBABY #ccam #cpam #chla

    UPDATE: originally marina was put on 2 Liter high flow nasal cannula to maintain a 98 SpO2 level, now shes on 1/8 of a Liter and is maintaining herself at 100!! My girl is doing so well. She had her first bottle of formula at 2 AM.
    She had an Epidural placed in to her upper back right below the shoulders, that is working great! Absolutely no pain at the incision or the drain tube. BUT she is extremely restless. For some reason (my guess the cannula was placed in an awkward position) she gets really irritable to a point where she begins to start thrashing in the bed. We had to restrain one arm to the bed and had to sock the other arm with the IV to keep her from ripping out the Cannula or scratching her face. They had to board her left foot to maintain a healthy IV, the last thing she needs is to ruin another IV after multiple failed ones.
    GOOD NEWS:
    Drain output is low
    Urine output is good
    Oxygen is set at 1/8 LPM
    SpO2 is at 100
    HR is in the 120s
    BP is a little better now.
    Since we changed the position of the cannula, shes less irritated.
    PLANS:
    Remove catheter in a few hours.
    Remove her O2 assistance by end of stay
    Remove epidural and manage pain with IV tylenol by mid day tomorrow
    GOD IS GOOD.

    #blessed #CPAMBABY #ccam #cpam #chla

    27 8 11 April, 2019
    Primer día de Capacitación para Cooprinsem, esta cooperativa Chilena es líder en la implementación de protocolos de Inseminación Artificial con sus clientes de todo Chile abarcan el 60% de las inseminaciones del País, muchas felicidades por su excelente labor y muchas gracias por su confianza!!
#bovinosvirtual #invitromexico #ccam #inseminacionartificial #cooprinsem

    Primer día de Capacitación para Cooprinsem, esta cooperativa Chilena es líder en la implementación de protocolos de Inseminación Artificial con sus clientes de todo Chile abarcan el 60% de las inseminaciones del País, muchas felicidades por su excelente labor y muchas gracias por su confianza!!
    #bovinosvirtual #invitromexico #ccam #inseminacionartificial #cooprinsem

    26 0 11 April, 2019
    THANK GOD. my baby is out pf surgery. There were no complications. Everything went as planned. Shes managing pain pretty well for now , working on improving her blood gas results. Currently are checking every 30 minutes. She is opening her eyes here and there. But trying to keep her calm and quiet. Than you everyone for your prayers . Ill keep updating as i recieve information.

#blessed #CPAMBABY #ccam #cpam #chla

    THANK GOD. my baby is out pf surgery. There were no complications. Everything went as planned. Shes managing pain pretty well for now , working on improving her blood gas results. Currently are checking every 30 minutes. She is opening her eyes here and there. But trying to keep her calm and quiet. Than you everyone for your prayers . Ill keep updating as i recieve information.

    #blessed #CPAMBABY #ccam #cpam #chla

    27 2 11 April, 2019
    We are currently waiting. Little to no sleep last night in addition to all the emotions weve got, we're running on fumes .

#blessed #CPAMBABY #ccam #cpam #chla

    We are currently waiting. Little to no sleep last night in addition to all the emotions weve got, we're running on fumes .

    #blessed #CPAMBABY #ccam #cpam #chla

    24 0 10 April, 2019
    🅴🆃🅷🅰🅽 +588~590.👑
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2019.03.11~13
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#입원생활
.
든이의 #생애첫수술 이 있은지 벌써 한달.
잠시나마 마음의 여유가 생긴 지금이라도 그간의 기록을 남겨본다.✍🏻
.
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11일-
이른 아침 수술콜이 떨어졌다.
아이 둘 출산할 때도 이렇게까지 떨리진 않았는데...
우리 문제보다 더 크신 그 분을 믿으며...🙏🏻
.
12일-
아이 퇴원하면 정말 다 사주고 다 해줘야지..!
일단 타요뽀로로키즈카페부터...
.
13일-
늦은 오후 오빠로부터 이든이가 곧 (지옥같은)흉관을 빼고
내일 퇴원 할 수 있다는 희소식을 들었다!
할렐루야!!
정말 간절히 수시로 기도했는데 마음이 합했는지 금방 들어주셨다.
소식을 안 그때부터 어찌나 힘이 나던지~
묵은 체증이 싹 사라진 듯했다.
돌아보니 이든이가 너무 크지도 너무 어리지도 않은 적당한 때에
수술을 해 우리 둘이 병실에서 함께 자도 어렵지 않아 감사하고
또 이담이는 케어하기 너무 어리지도
엄마를 확실히 알아볼만큼 크지도 않아
외할머니가 전담해도 부담이 없어 감사하고
이번주에 갑자기 시작된 이담이의 감기도
이든이 퇴원 전에 열이 잡혀 감사하고
이든이의 입원이 더 길어지면 이담이 모유수유도 곧 단유 될 것만 같아
염려가 되었는데 알맞은 때에 퇴원할 수 있는 컨디션을 주셔서 감사하고
별게 다 감사한 것들 뿐이다.ㅎ
퇴원하는 날엔 오빠가 출근을 해야해서
오늘은 이든이랑 셋이 병실에서의 마지막밤을 보내기로 하고
담이 막수를 끝내고 버스를 타고 병원 가는 길.
오랜만에 버스 타니 또 재미있네.
든이가 엄마를 기다리며 활보하고 있다는 오빠의 중간보고(?)에
또 연신 미소가 지어지고.
나도 영락없는 엄마가 다 되었네...ㅎ
만나면 우리 아들 꼬옥 안아줘야지,
회복하느라 견뎌내느라 정말 고생 많았다고...사랑한다고...♡
그리고 입원기간 내내 든이와 함께 해 준 울 오빠에겐
짧고 뜨거운(?) 뽀뽀로 고마움을 답해야지~
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#사랑든이♥️
#엄마마음
#선천성기형낭종이형성증
#지나고나니추억
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It’s been a month from the day Ethan had a surgery for the first time in his life and all is well with him..♥
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#helloethan
#ccam
#thankGod
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————————————————————————————
#젊줌마그램 #일상 #맘스타그램 #인스타베이비 #육아스타그램 #애둘맘 #연년생맘 #아들맘그램 #19개월아기 #이든일기 #성장일기 #가족 #엄마일기 #육아기록 #든이의입원생활 #momoftwo #momlife #instababy #babyboy #bestrongmother #latepost

    🅴🆃🅷🅰🅽 +588~590.👑
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    2019.03.11~13
    .
    #입원생활
    .
    든이의 #생애첫수술 이 있은지 벌써 한달.
    잠시나마 마음의 여유가 생긴 지금이라도 그간의 기록을 남겨본다.✍🏻
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    ————————————————————————————
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    11일-
    이른 아침 수술콜이 떨어졌다.
    아이 둘 출산할 때도 이렇게까지 떨리진 않았는데...
    우리 문제보다 더 크신 그 분을 믿으며...🙏🏻
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    12일-
    아이 퇴원하면 정말 다 사주고 다 해줘야지..!
    일단 타요뽀로로키즈카페부터...
    .
    13일-
    늦은 오후 오빠로부터 이든이가 곧 (지옥같은)흉관을 빼고
    내일 퇴원 할 수 있다는 희소식을 들었다!
    할렐루야!!
    정말 간절히 수시로 기도했는데 마음이 합했는지 금방 들어주셨다.
    소식을 안 그때부터 어찌나 힘이 나던지~
    묵은 체증이 싹 사라진 듯했다.
    돌아보니 이든이가 너무 크지도 너무 어리지도 않은 적당한 때에
    수술을 해 우리 둘이 병실에서 함께 자도 어렵지 않아 감사하고
    또 이담이는 케어하기 너무 어리지도
    엄마를 확실히 알아볼만큼 크지도 않아
    외할머니가 전담해도 부담이 없어 감사하고
    이번주에 갑자기 시작된 이담이의 감기도
    이든이 퇴원 전에 열이 잡혀 감사하고
    이든이의 입원이 더 길어지면 이담이 모유수유도 곧 단유 될 것만 같아
    염려가 되었는데 알맞은 때에 퇴원할 수 있는 컨디션을 주셔서 감사하고
    별게 다 감사한 것들 뿐이다.ㅎ
    퇴원하는 날엔 오빠가 출근을 해야해서
    오늘은 이든이랑 셋이 병실에서의 마지막밤을 보내기로 하고
    담이 막수를 끝내고 버스를 타고 병원 가는 길.
    오랜만에 버스 타니 또 재미있네.
    든이가 엄마를 기다리며 활보하고 있다는 오빠의 중간보고(?)에
    또 연신 미소가 지어지고.
    나도 영락없는 엄마가 다 되었네...ㅎ
    만나면 우리 아들 꼬옥 안아줘야지,
    회복하느라 견뎌내느라 정말 고생 많았다고...사랑한다고...♡
    그리고 입원기간 내내 든이와 함께 해 준 울 오빠에겐
    짧고 뜨거운(?) 뽀뽀로 고마움을 답해야지~
    .
    .
    #사랑든이 ♥️
    #엄마마음
    #선천성기형낭종이형성증
    #지나고나니추억
    .
    .
    It’s been a month from the day Ethan had a surgery for the first time in his life and all is well with him..♥
    .
    .
    #helloethan
    #ccam
    #thankGod
    .
    .
    ————————————————————————————
    #젊줌마그램 #일상 #맘스타그램 #인스타베이비 #육아스타그램 #애둘맘 #연년생맘 #아들맘그램 #19개월아기 #이든일기 #성장일기 #가족 #엄마일기 #육아기록 #든이의입원생활 #momoftwo #momlife #instababy #babyboy #bestrongmother #latepost

    31 15 10 April, 2019

    60 8 10 April, 2019
    ROUND TWO!!!!! Today is her pre op evaluation!!!! She seems healthy but well see what doctors say. If all goes well she should have a schedule surgery sometime tomorrow

#blessed #CPAMBABY #ccam #cpam #chla

    ROUND TWO!!!!! Today is her pre op evaluation!!!! She seems healthy but well see what doctors say. If all goes well she should have a schedule surgery sometime tomorrow

    #blessed #CPAMBABY #ccam #cpam #chla

    14 2 9 April, 2019
    Wonderful  talk today by Suzanne Walsh in the  Yellow Room, CCAM. This talk was part of the @ma_creative-practice_gmit visiting lecturer series which are open to the public, alumni and all students.  Suzanne Walsh is an artist, writer and musician originally from Wexford, currently based in Dublin. 
Her work is cross-disciplinary, with crossovers between the literary, music, and art world. Writing forms one strand part of the practice, both in the form of essays and fiction but also interventions and spoken-word performances in a gallery/lecture-hall context. She has a background in acting and theatre which she utilises within performances. 
Music/sound forms the other strand of her practice, from singing and instrumentation to improvisation and experimentation with performances and recording. 
Drawing and installation is also used occasionally. 
Recent interests in research involve language, the outer limits of what is the 'self', human/animal divide, notions of poetic/fictional truth, rewilding. 
Suzanne also has an editorial practice, including the magazine Critical Bastards.  Photo credit on this post @maher.alice #contemporaryart #interdisciplinary #exploration #2d3d2d3d #talks #cagmit #ccam #galway #galway2020

    Wonderful talk today by Suzanne Walsh in the Yellow Room, CCAM. This talk was part of the @ma_creative -practice_gmit visiting lecturer series which are open to the public, alumni and all students. Suzanne Walsh is an artist, writer and musician originally from Wexford, currently based in Dublin.
    Her work is cross-disciplinary, with crossovers between the literary, music, and art world. Writing forms one strand part of the practice, both in the form of essays and fiction but also interventions and spoken-word performances in a gallery/lecture-hall context. She has a background in acting and theatre which she utilises within performances.
    Music/sound forms the other strand of her practice, from singing and instrumentation to improvisation and experimentation with performances and recording.
    Drawing and installation is also used occasionally.
    Recent interests in research involve language, the outer limits of what is the 'self', human/animal divide, notions of poetic/fictional truth, rewilding.
    Suzanne also has an editorial practice, including the magazine Critical Bastards. Photo credit on this post @maher.alice #contemporaryart #interdisciplinary #exploration #2d3d2d3d #talks #cagmit #ccam #galway #galway2020

    29 0 8 April, 2019
    A malformação adenomatóide cística (MAC) congênita consiste em uma anomalia pulmonar caracterizada por crescimento excessivo dos bronquíolos terminais, resultando na formação de cistos de variados tamanhos dentro do tecido pulmonar. É classificada em tipos Tipo I (cisto maiores), II (cistos menores) e III (praticamente massa uniforme) de Stocker.  Atualmente, com a utilização da ultra-sonografia obstétrica de rotina, a gestante deverá fazer ultrassonografias periódicas para o controle da lesão e ser encaminhada para um cirurgião pediátrico que vai acompanhar o caso até o nascimento do bebê, gerenciando e organizando a sua equipe para o caso de haver necessidade de uma cirurgia de urgência ainda no período neonatal. 
Para os recém-nascidos sem sintomas, uma radiografia de tórax é realizada e os pacientes são liberados para complementação diagnóstica com tomografia. 
A falha no diagnóstico das malformações resulta em tratamentos desnecessários, complicações infecciosas recorrentes e hospitalizações freqüentes. Existe relação da MAC com desenvolvimento futuro de tumores do tecido pulmonar.  Mesmo com o atraso no diagnóstico, todos os pacientes podem ser curados com o tratamento operatório. 
A lobectomia pulmonar é o tratamento cirúrgico de escolha, que poderá ser realizada por meio de cirurgia aberta convencional ou por meio de video-toracoscopia. 
Agende uma consulta conosco e venha esclarecer suas dúvidas!

www.walbertosouza.com.br

#walbertosouza #cirurgiãopediátrico  #cirurgiapediátrica  #médicopediátra #médicocirurgião #prénatal  #anomalias #recémnascidos  #malformações #cistopulmonar  #crescimentoadenomatoso #gestante #ccam #ipeg

    A malformação adenomatóide cística (MAC) congênita consiste em uma anomalia pulmonar caracterizada por crescimento excessivo dos bronquíolos terminais, resultando na formação de cistos de variados tamanhos dentro do tecido pulmonar. É classificada em tipos Tipo I (cisto maiores), II (cistos menores) e III (praticamente massa uniforme) de Stocker.  Atualmente, com a utilização da ultra-sonografia obstétrica de rotina, a gestante deverá fazer ultrassonografias periódicas para o controle da lesão e ser encaminhada para um cirurgião pediátrico que vai acompanhar o caso até o nascimento do bebê, gerenciando e organizando a sua equipe para o caso de haver necessidade de uma cirurgia de urgência ainda no período neonatal.
    Para os recém-nascidos sem sintomas, uma radiografia de tórax é realizada e os pacientes são liberados para complementação diagnóstica com tomografia.
    A falha no diagnóstico das malformações resulta em tratamentos desnecessários, complicações infecciosas recorrentes e hospitalizações freqüentes. Existe relação da MAC com desenvolvimento futuro de tumores do tecido pulmonar. Mesmo com o atraso no diagnóstico, todos os pacientes podem ser curados com o tratamento operatório.
    A lobectomia pulmonar é o tratamento cirúrgico de escolha, que poderá ser realizada por meio de cirurgia aberta convencional ou por meio de video-toracoscopia.
    Agende uma consulta conosco e venha esclarecer suas dúvidas!

    www.walbertosouza.com.br

    #walbertosouza #cirurgiãopediátrico #cirurgiapediátrica #médicopediátra #médicocirurgião #prénatal #anomalias #recémnascidos #malformações #cistopulmonar #crescimentoadenomatoso #gestante #ccam #ipeg

    49 2 8 April, 2019
    Public Talk by Suzanne Walsh @suz.walsh - Monday 8th of April - 2pm - Yellow Room CCAM. This talk is part of the @ma_creativepractice_gmit visiting lecturer series and is open to the public, alumni and all students.  Suzanne Walsh is an artist, writer and musician originally from Wexford, currently based in Dublin. 
Her work is cross-disciplinary, with crossovers between the literary, music, and art world. Writing forms one strand part of the practice, both in the form of essays and fiction but also interventions and spoken-word performances in a gallery/lecture-hall context. She has a background in acting and theatre which she utilises within performances. 
Music/sound forms the other strand of her practice, from singing and instrumentation to improvisation and experimentation with performances and recording. 
Drawing and installation is also used occasionally. 
Recent interests in research involve language, the outer limits of what is the 'self', human/animal divide, notions of poetic/fictional truth, rewilding. 
Suzanne also has an editorial practice, including the magazine Critical Bastards.  Photo credit on this post @maher.alice #contemporaryart #interdisciplinary #exploration #2d3d2d3d #talks #cagmit #ccam #GMITsdca #galway #galway2020 @gmit_official

    Public Talk by Suzanne Walsh @suz.walsh - Monday 8th of April - 2pm - Yellow Room CCAM. This talk is part of the @ma_creativepractice_gmit visiting lecturer series and is open to the public, alumni and all students. Suzanne Walsh is an artist, writer and musician originally from Wexford, currently based in Dublin.
    Her work is cross-disciplinary, with crossovers between the literary, music, and art world. Writing forms one strand part of the practice, both in the form of essays and fiction but also interventions and spoken-word performances in a gallery/lecture-hall context. She has a background in acting and theatre which she utilises within performances.
    Music/sound forms the other strand of her practice, from singing and instrumentation to improvisation and experimentation with performances and recording.
    Drawing and installation is also used occasionally.
    Recent interests in research involve language, the outer limits of what is the 'self', human/animal divide, notions of poetic/fictional truth, rewilding.
    Suzanne also has an editorial practice, including the magazine Critical Bastards. Photo credit on this post @maher.alice #contemporaryart #interdisciplinary #exploration #2d3d2d3d #talks #cagmit #ccam #GMITsdca #galway #galway2020 @gmit_official

    27 0 8 April, 2019

Top #CCAM posts

    September is Childhood Cancer Awareness Month. 
When the first picture was taken, I was just like anyone else- a happy mom with two healthy boys, celebrating my oldest sons 3rd birthday at Disney World. I might have scrolled past this post too. I’m sure I would have thought it was scary, or depressing. “Not my kids!” One week later my child was diagnosed with stage IV cancer at his physical. 
9 months later my child died. 
This is what 9 months of cancer treatment did to Miles, before it killed him.

When a medication has side effects, we recall it. We fix it. It’s a priority. But children are dying as a result of cancer treatment all the time- and yet our kids are still stuck with only 3.8% of the national budget for cancer research, while adults get 96%. It’s too late for Miles and so many of his friends. It’s not too late for your children. Please help us spread awareness this month.

Miles Remington Shanaghan
5-16-14 - 2-13-18

    September is Childhood Cancer Awareness Month.
    When the first picture was taken, I was just like anyone else- a happy mom with two healthy boys, celebrating my oldest sons 3rd birthday at Disney World. I might have scrolled past this post too. I’m sure I would have thought it was scary, or depressing. “Not my kids!” One week later my child was diagnosed with stage IV cancer at his physical.
    9 months later my child died.
    This is what 9 months of cancer treatment did to Miles, before it killed him.

    When a medication has side effects, we recall it. We fix it. It’s a priority. But children are dying as a result of cancer treatment all the time- and yet our kids are still stuck with only 3.8% of the national budget for cancer research, while adults get 96%. It’s too late for Miles and so many of his friends. It’s not too late for your children. Please help us spread awareness this month.

    Miles Remington Shanaghan
    5-16-14 - 2-13-18

    3,410 127 1 September, 2018

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    Sad truth as childhood cancer awareness month begins to move towards it’s end- awareness and action will be bigger next year, if solely for the fact that record high rates of children are being diagnosed with cancer every single day. Children are dying every day. Our family of pediatric cancer fighters, survivors and the bereaved grows exponentially every single day. 
Every 3 minutes we are gaining another family in the fight against pediatric cancer.

Every day we are gaining 150 more bereaved families of childhood cancer.

One day we’ll look back and wonder how it took us so long. And the answer will be that so many kids had to fight and die before enough people were affected to stand up and say “no more”. #fightlikemiles 
#childhoodcancerawareness
#gogold
#ccam
#neuroblastomaawareness

    Sad truth as childhood cancer awareness month begins to move towards it’s end- awareness and action will be bigger next year, if solely for the fact that record high rates of children are being diagnosed with cancer every single day. Children are dying every day. Our family of pediatric cancer fighters, survivors and the bereaved grows exponentially every single day.
    Every 3 minutes we are gaining another family in the fight against pediatric cancer.

    Every day we are gaining 150 more bereaved families of childhood cancer.

    One day we’ll look back and wonder how it took us so long. And the answer will be that so many kids had to fight and die before enough people were affected to stand up and say “no more”. #fightlikemiles
    #childhoodcancerawareness
    #gogold
    #ccam
    #neuroblastomaawareness

    2,290 47 26 September, 2018
    I want to close September with these photos. The first time I saw Miles, and the last time I saw him. From glowing with joy and hope and love to bloodied and broken, dreading every breath I had to take without him. This is the bitter, cold, cruel reality of childhood cancer. We are loud because this is a travesty. It’s injustice. Our world can do better for our children. Too late for Miles. Too late for my firstborn child, the love of my life. It’s not too late for your kids.

    I want to close September with these photos. The first time I saw Miles, and the last time I saw him. From glowing with joy and hope and love to bloodied and broken, dreading every breath I had to take without him. This is the bitter, cold, cruel reality of childhood cancer. We are loud because this is a travesty. It’s injustice. Our world can do better for our children. Too late for Miles. Too late for my firstborn child, the love of my life. It’s not too late for your kids.

    3,482 145 1 October, 2018

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    These pictures are only 5 months apart, it goes to show how quickly things can change...🎗❤️
In the picture on the left, it was my first day of year 10, little did I know that I would only spend 2 days in year 10 and not return for another 8 months. Little did I know that the annoying lump in my left butt cheek would soon enough consume my whole life and take me away from the thing I loved most: school. 
As you commence your first days at school, remember how quickly your circumstances can change, so please cherish each day at school because there are many sick children and teenagers out there who would much rather be at school than desperately fighting for their life. 
This Childhood Cancer Awareness Month (#ccam ) get your school involved by doing a bake sale, a sponsored silence, the possibilities are endless! If you need any advice about how you can raise money at your school, please contact me. 🎗❤️
I hope you guys are having a great day! ❤️
#school #firstdayofschool #childhoodcancerawarenessmonth #morethan4 #gogoldforkids

    These pictures are only 5 months apart, it goes to show how quickly things can change...🎗❤️
    In the picture on the left, it was my first day of year 10, little did I know that I would only spend 2 days in year 10 and not return for another 8 months. Little did I know that the annoying lump in my left butt cheek would soon enough consume my whole life and take me away from the thing I loved most: school.
    As you commence your first days at school, remember how quickly your circumstances can change, so please cherish each day at school because there are many sick children and teenagers out there who would much rather be at school than desperately fighting for their life.
    This Childhood Cancer Awareness Month ( #ccam ) get your school involved by doing a bake sale, a sponsored silence, the possibilities are endless! If you need any advice about how you can raise money at your school, please contact me. 🎗❤️
    I hope you guys are having a great day! ❤️
    #school #firstdayofschool #childhoodcancerawarenessmonth #morethan4 #gogoldforkids

    3,096 81 5 September, 2018
    This is a start! Today has been sprinkled with touches of Miles, and I cant help but feel like this is a cherry on top! ❤️🎗❤️

    This is a start! Today has been sprinkled with touches of Miles, and I cant help but feel like this is a cherry on top! ❤️🎗❤️

    985 30 15 hours ago
    Hey guys! We are fundraising for a Buddy Bench in Miles’ memory at Buck Lake Elementary, the school he would have attended for Kindergarten next year. We’d love if you came and take a look at our Facebook page, Fight Like Miles! Today we also shared a special update about a little girl who shared Miles’ story at her school last week. Our Facebook page is updated several times daily, especially now that we are in September. ❤️🎗❤️ PS- all bracelet orders have been shipped as of today! We are completely caught up.

    Hey guys! We are fundraising for a Buddy Bench in Miles’ memory at Buck Lake Elementary, the school he would have attended for Kindergarten next year. We’d love if you came and take a look at our Facebook page, Fight Like Miles! Today we also shared a special update about a little girl who shared Miles’ story at her school last week. Our Facebook page is updated several times daily, especially now that we are in September. ❤️🎗❤️ PS- all bracelet orders have been shipped as of today! We are completely caught up.

    1,005 10 4 September, 2018

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    Today is the 7 month anniversary of Miles’ death. Today we raised $450 for a little girl who is fighting Neuroblastoma. I’m thanking you all from my bed where I’m currently tucked in with Louie, crying and missing Miles. Thank you for being our family. Thank you for helping these kids. Goodnight, everyone. ❤️🎗❤️

    Today is the 7 month anniversary of Miles’ death. Today we raised $450 for a little girl who is fighting Neuroblastoma. I’m thanking you all from my bed where I’m currently tucked in with Louie, crying and missing Miles. Thank you for being our family. Thank you for helping these kids. Goodnight, everyone. ❤️🎗❤️

    2,255 36 14 September, 2018
    I've been screaming for 6 damn years that September is Pediatric Cancer Awarenesss month. I walked into Walmart and saw these. It seems that our movement reached it's apex a couple a years ago with the whole #EmpireGoGold thing when dozens of other landmarks across the country went gold. I don't seem to notice the push anymore like I use to. Maybe it's because I lost Sam and have lost my focus on the issue. 
I lost my mother to breast cancer when I was 16. Cancer has taken everything from me. I'm definitely not againt awareness for any form of cancer. I'm just lost as to why we have to fight so hard for any modicum of national attention. When we do gain something one year the next it seems to dissapear.

Keep your heads to everyone out there fighting the beast from young to old.

I just feel a bit defeated is all.

    I've been screaming for 6 damn years that September is Pediatric Cancer Awarenesss month. I walked into Walmart and saw these. It seems that our movement reached it's apex a couple a years ago with the whole #EmpireGoGold thing when dozens of other landmarks across the country went gold. I don't seem to notice the push anymore like I use to. Maybe it's because I lost Sam and have lost my focus on the issue.
    I lost my mother to breast cancer when I was 16. Cancer has taken everything from me. I'm definitely not againt awareness for any form of cancer. I'm just lost as to why we have to fight so hard for any modicum of national attention. When we do gain something one year the next it seems to dissapear.

    Keep your heads to everyone out there fighting the beast from young to old.

    I just feel a bit defeated is all.

    563 20 10 September, 2018
    In honor of #ChildhoodCancerAwarnessMonth, @redturn2 of the @dodgers brought in a pair of cleats for patients on our Hematology-Oncology floor to decorate and color. Big thanks to Justin—and make sure to catch these on him at this weekend’s game! #ccam

    In honor of #ChildhoodCancerAwarnessMonth , @redturn2 of the @dodgers brought in a pair of cleats for patients on our Hematology-Oncology floor to decorate and color. Big thanks to Justin—and make sure to catch these on him at this weekend’s game! #ccam

    2,112 36 31 August, 2018